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Category Archives: Awareness

Blog Carnival: Adults Gone Missing?

Theme: Adults on the Autism Spectrum: Where Art Thou? Are They Not As Important?

Blog 1:  

The autistic community tends to forget the adult aspect of the issue.  With so many advancements in technology, people tend to forget that they can help adults as well as children.  Yes, children are the focal point of today’s autism argument, but adults are in need and could benefit from this technology.

 

Blog #2:

Resources and knowledge is lacking when it comes to autistic adults.  Often times there are not many options when it comes to this often forgotten group.  It’s hard to help and properly care for these people when people don’t know how to.

 

Blog #3: 

Adults with autism often have a limited voice in today’s media.  This is due to the lack of knowledge and ignorance on how to approach the issue.  Often “experts” try to take the helm, but fall short since they more than likely don’t have the first hand experience.  If autistic adults are ever to be helped, then it is up to everyone to allow them to participate in discussions concerning them.

 

Blog #4:

Adults with disabilities remind those without disability. It reminds people that life is unpredictable and that anything can happen to anyone anytime at any place. Life can be cruel and this can tie into the fact that adults with autism are getting the end of the stick when it comes tom services and funding. Thankfully some parents think of the long term plan for their children and plan accordingly and supporting foundations that remember the adult diagnosed on the ASD.

Blog #5: 

The population of autistic adults is steadily growing.  It is up to the community at large to come up with proactive ways to help everyone cope with the various issues associated with this population. Committees and family involvement are two primary methods of helping. Whether it’s having meetings with everyone in the area, or tackling the issue head on, raising awareness is key to the success of individuals being able to accept and potentially remedy these issues

Blog #6:

 Guest post on Aspie Teacher’s blog by Michael Drejer talks about being employed and having Asperger’s syndrome. He explains how it is possible to get a job, and the pro’s and con’s that comes with it for the one with Asperger’s and for the companies that hire these disabled persons. He reminds people with autism that just because you may be disabled does not mean that you cannot have a job. Take advantaged of it and do what you can to live a great and successful life.

Blog #7:

Like the previous blog this blog talks about working and having autism. Tracey Daigneau, M.Ed., Director of Day Services at New England Village talks about how New England Village has created True Meaning Jewelry which promotes autism awareness as well as employs autistic individuals as well. This line of work gives these special individuals pride in what they do as well as who they are.

Blog #8: 

With taking care of autistic adult come a lot of hard times and well as easy times. Here a woman takes us through a day of her changing world when taking care of her 23 year son who is autistic.

Blog #9: 

 Another aspect that can be covered with respect to the issue of autistic adults is the factor of gender.  There is a tendency to pay closer attention to the needs of males over those of females.  Females with AS are atypical in their interactions than “normal” females especially in regards to the ages and genders that they typically interact with.  Seeing articles with an accurate portrayal of female autistic people are rare.

 

Blog #10: 

Jason Ross creator of Drive Mom Crazy writes about how he first coped with being diagnosed with autism and how he had to get into the community with a encouraging push from his mom. He talks about his life with autism and the many things he was able and still is achieving being diagnosed with Asperger’s.

Every last word used is IMPORTANT!

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Dear Parents, From Aspergers…

 

Autism Functions/The Function of Autism

Here’s another good article from my class readings. It was thought provoking like all the readings we’ve had thus far… Take a look for yourself!

Stuart Murray’s Article “Autism Functions/The Functions of Autism”

 

 

 

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They Grow Up: Where are the Adults?

“Under the deficit model, autistic people are portrayed as broken humans who are ill and require fixing to enable them to function normally in society. In contrast, non-autistic people are viewed as neurologically healthy and psychologically well.”– Scott Michael Robertson

As much as we talk about autism and see autism in our lives whether all the time or not, I’ve never actually thought about how I only thought about kids having autism. I guess when I seen a child with autism, I forgot that one day they will grow up and be adults one day. It’s actually kind of bizarre how I never think of this when encountering someone with autism. Indirectly, I was infantilizing autism (Jennifer L. Stevenson).

I can’t believe I actually forgot that kids grow up with autism. I guess I’m so blinded by my sympathy that I just forget the fact that some of the autistic kids may grow up and actually go to college one day. Since I’m new to autism, I’m just learning about low functioning autism (LFA) and high functioning autism (HFA).

Take a look at this video:

What are your first reactions and thoughts to this video? Did you notice how no one heard the woman answering their questions until the end? I noticed the lady wasn’t being heard. I started thinking about how she was answering the questions from experience. I also noticed that the people didn’t want to hear her. It reflects the position of autistic adults in the autism spectrum. They go unheard and people put them on the back burner. In my opinion, that has got to STOP!

Ok so take a look at this, though you may have seen it before, I got it from a reading my professor gave our class called, Neurodiversity, Quality Of Life, And Autistic Adults: Shifting Research And Professional Focuses Onto Real-Life Challenges:

“Autistic people are viewed under the neurodiversity model as individuals who possess a blend of cognitive strengths and weaknesses in the following core domains:

  • Language, Communication, and Social Interaction
  • Sensory Processing (environmental input)
  • Motor Skill Execution (environmental output)

Goal-oriented and Reflexive Thinking, Planning, and Self-Regulation.” (Robertson)

Whereas “the deficit model portrays autistic people as ill, broken, and in need of fixing” (Robertson). In class we were talking about sympathy and pity and how sympathy goes with the first model and pity goes with the second model. We talked about how these “poster kids” stand as the face of autism because organizations like Autism Speaks, Autism Society of America, etc. targets a specific audience for example parents because it invokes a sense of parenting and sympathy from not only parents but other like myself. Also, we talked about how with children, we think about innocence and sympathy comes into play ad with adults we think that there’s something wrong with them and they’re weird. This contrast was very interesting to me because we are so quick to judge adults but children we give the benefit of the doubt.

So with all this being said and recognized, why aren’t autistic adults incorporated more into the publicity, for lack of a better word right now? I believe it would give people more a different view and perspective on autism if they seen, I’m sure, the many adults that live on their own, going to college, have jobs, LFA or HFA, etc. Think of the impact it could have if people remember the adults…

Wow!

I think that is all I want to say, but if not.. I’ll be back!

How’d I forget he will grow up?

I love this little guy!

 

New to the World of Autism

What is Autism?

Well really I couldn’t tell you. I’m new to it myself. Actually, before I met my friend’s little brother, I was oblivious to the world of autism. All I knew about it was that people with autism couldn’t speak or interact “normally” with other people. However, when I met DeAndre my perception of autism changed completely. DeAndre is a very bright, energetic and smart little boy. He loves guitars like me and he gives the best kisses just like my mother. Little did I know that every time I would see Deandre I was yearning to know more about his condition to fully understand how autism works.

Hi Deandre

Like I stated previously I had no clue to what autism was. For me autism was a life long: social interaction prohibitor, learning disability, and speech disability. I had no other definition to what autism was than this, but being in English 416: Autism, culture and representation class, I’m becoming more knowlegeable to what autism really means.

For the first class we had to read three short articles: A 09 Autism Spectrum Disorder, Autism Spectrum Disorders (ASDs), 10 Autism Controversies.

With learning about any new subject there is tons of information. However, when reading the first article on the Autism Spectrum Disorder, I realize how much weight labels hold. The word “normal” is partisan. What really is normal? And who made up the conditions to what “normal” is in this society because anyone can look around and see that “normal” doesn’t exist or just simply isn’t cool. Although there were many things that stood out as making sense or not, one thing that stood out to me was the one criteria of “deficits in understanding and use of nonverbal communication, to total lack of facial expression or gestures (American Psychiatric Association).” I may be taking it a whole different direction but DeAndre smiles, laughs, look at me and his brother crazy. I’m pretty sure this criteria is pertaining to the very severe form of autism but still…

He's curious and it's cute!

I’m interested in learning more about this disorder and actually exploring more about the culture and how it does or doesn’t weaves in and out of this sort of “normal” society.

Autism Speaks and GO BLUE!

Are You Aware?